Focus Topics

topic 1 | Activity 8: Betty’s disease progresses


Betty’s disease has now progressed to stage 5 or end-stage kidney disease. Betty is dealing with the knowledge that her condition is deteriorating and that she will die from her disease.

She talks about the symptom burden of her disease and highlights the importance of the management plan that has been established by the care team in supporting her and her family through this time.

  1. What are Betty’s main concerns now that her disease has progressed?
  2. How are her concerns different from those she highlighted in the first scene?
  3. What are some of the community and social supports that may help Betty as her disease progresses?
  4. How can the roles and responsibilities within the care team change as Betty’s disease progresses?